I grew up as an only child, with a single mother. Because we were poor and
because I knew my father had emigrated from Syria, I imagined he looked like
Omar Sharif.
I hoped he would be rich and kind and would come into our lives
(and our not yet furnished apartment) and help us. Later, after I'd met
my father, I tried to believe he'd changed his number and left no forwarding
address because he was an idealistic revolutionary, plotting a new world for
the Arab people.
Even as a feminist, my whole life I'd been waiting for a man to love, who could
love me. For decades, I'd thought that man would be my father. When I was 25,
I met that man and he was my brother.
By then, I lived in New York, where I was trying to write my first novel. I had a
job at a small magazine in an office the size of a closet, with three other aspiring
writers. When one day a lawyer called me, me, the middle-class girl from
California who hassled the boss to buy us health insurance, and said his client
was rich and famous and was my long-lost brother, the young editors went wild.
This was 1985 and we worked at a cutting-edge literary magazine, but I'd
fallen into the plot of a Dickens novel and really, we all loved those best.
The lawyer refused to tell me my brother's name and my colleagues started a
betting pool. The leading candidate: John Travolta. I secretly hoped for
a literary descendant of Henry James, someone more talented than I, someone
brilliant without even trying.
When I met Steve, he was a guy my age in jeans, Arab- or Jewish-looking and
handsomer than Omar Sharif. We took a long walk, something, it happened,
that we both liked to do. I don't remember much of what we said that first day,
only that he felt like someone I'd pick to be a friend. He explained that he
worked in computers. I didn't know much about computers. I still worked on a
manual Olivetti typewriter.
I told Steve I'd recently considered my first purchase of a computer: something
called the Cromemco. Steve told me it was a good thing I'd waited. He said he
was making something that was going to be insanely beautiful.
I want to tell you a few things I learned from Steve, during three distinct periods,
over the 27 years I knew him. They're not periods of years, but of states of
being. His full life. His illness. His dying.
because I knew my father had emigrated from Syria, I imagined he looked like
Omar Sharif.
I hoped he would be rich and kind and would come into our lives
(and our not yet furnished apartment) and help us. Later, after I'd met
my father, I tried to believe he'd changed his number and left no forwarding
address because he was an idealistic revolutionary, plotting a new world for
the Arab people.
Even as a feminist, my whole life I'd been waiting for a man to love, who could
love me. For decades, I'd thought that man would be my father. When I was 25,
I met that man and he was my brother.
By then, I lived in New York, where I was trying to write my first novel. I had a
job at a small magazine in an office the size of a closet, with three other aspiring
writers. When one day a lawyer called me, me, the middle-class girl from
California who hassled the boss to buy us health insurance, and said his client
was rich and famous and was my long-lost brother, the young editors went wild.
This was 1985 and we worked at a cutting-edge literary magazine, but I'd
fallen into the plot of a Dickens novel and really, we all loved those best.
The lawyer refused to tell me my brother's name and my colleagues started a
betting pool. The leading candidate: John Travolta. I secretly hoped for
a literary descendant of Henry James, someone more talented than I, someone
brilliant without even trying.
When I met Steve, he was a guy my age in jeans, Arab- or Jewish-looking and
handsomer than Omar Sharif. We took a long walk, something, it happened,
that we both liked to do. I don't remember much of what we said that first day,
only that he felt like someone I'd pick to be a friend. He explained that he
worked in computers. I didn't know much about computers. I still worked on a
manual Olivetti typewriter.
I told Steve I'd recently considered my first purchase of a computer: something
called the Cromemco. Steve told me it was a good thing I'd waited. He said he
was making something that was going to be insanely beautiful.
I want to tell you a few things I learned from Steve, during three distinct periods,
over the 27 years I knew him. They're not periods of years, but of states of
being. His full life. His illness. His dying.
HARD WORKER
Steve worked at what he loved. He worked really hard. Every day. He was
never embarrassed about working hard, even if the results were failures.
If someone as smart as Steve wasn't ashamed to admit trying, maybe I didn't
have to be. When he got kicked out of Apple, things were painful. He told me
about a dinner at which 500 Silicon Valley leaders met the then-sitting
president. Steve hadn't been invited. He was hurt but he still went to work at
Next. Every single day. Novelty was not Steve's highest value. Beauty was.
For an innovator, Steve was remarkably loyal. If he loved a shirt, he'd order
10 or 100 of them. In the Palo Alto house, there are probably enough
black cotton turtlenecks for everyone in this church.
He didn't favor trends or gimmicks. He liked people his own age. His
philosophy of aesthetics reminds me of a quote that went something like this:
"Fashion is what seems beautiful now but looks ugly later; art can be ugly
at first but it becomes beautiful later."
Steve always aspired to make beautiful later. He was willing to be
misunderstood. Uninvited to the ball, he drove the third or fourth iteration
of his same black sports car to Next, where he and his team were quietly
inventing the platform on which Tim Berners-Lee would write the program
for the World Wide Web.
Steve was like a girl in the amount of time he spent talking about love. Love
was his supreme virtue, his god of gods. He tracked and worried about the
romantic lives of the people working with him.
Whenever he saw a man he thought a woman might find dashing, he called
out, "Hey are you single? Do you wanna come to dinner with my sister?" I
remember when he phoned the day he met Laurene. "There's this beautiful
woman and she's really smart and she has this dog and I'm going to marry her."
HUMBLE AND FUN-LOVING
Steve was humble. Steve liked to keep learning. With his four children, with his
wife, with all of us, Steve had a lot of fun. He treasured happiness. Then,
Steve became ill and we watched his life compress into a smaller circle. Once,
he'd loved walking through Paris. He'd discovered a small handmade soba
shop in Kyoto. He downhill skied gracefully. He crosscountry skied clumsily.
No more.
Eventually, even ordinary pleasures, like a good peach, no longer appealed
to him. Yet, what amazed me, and what I learned from his illness, was how
much was still left after so much had been taken away.
I remember my brother learning to walk again, with a chair. After his liver
transplant, once a day he would get up on legs that seemed too thin to
bear him, arms pitched to the chair back. He'd push that chair down the
Memphis hospital corridor towards the nursing station and then he'd sit down
on the chair, rest, turn around and walk back again. He counted his steps
and, each day, pressed a little farther. Laurene got down on her knees and
looked into his eyes.
"You can do this, Steve," she said. His eyes widened. His lips pressed into
each other. He tried. He always, always tried, and always with love at
the core of that effort. He was an intensely emotional man.
I realized during that terrifying time that Steve was not enduring the pain for
himself. He set destinations: his son Reed's graduation from high school,
his daughter Erin's trip to Kyoto, the launching of a boat he was building on
which he planned to take his family around the world and where he hoped he
and Laurene would someday retire.
One time when Steve had contracted a tenacious pneumonia his doctor forbid
everything, even ice. We were in a standard I.C.U. unit. Steve, who generally
disliked cutting in line or dropping his own name, confessed that this once,
he'd like to be treated a little specially. I told him: Steve, this is special treatment.
He leaned over to me, and said: "I want it to be a little more special." Intubated,
when he couldn't talk, he asked for a notepad. He sketched devices to hold
an iPad in a hospital bed. He designed new fluid monitors and x-ray
equipment. He redrew that not-quite-special-enough hospital unit.
And every time his wife walked into the room, I watched his smile remake itself
on his face. For the really big, big things, you have to trust me, he wrote on
his sketchpad. He looked up. You have to. By that, he meant that we should
disobey the doctors and give him a piece of ice.
None of us knows for certain how long we'll be here. On Steve's better days,
even in the last year, he embarked upon projects and elicited promises from his
friends at Apple to finish them. Some boat builders in the Netherlands have a
gorgeous stainless steel hull ready to be covered with the finishing wood. His
three daughters remain unmarried, his two youngest still girls, and he'd wanted
to walk them down the aisle as he'd walked me the day of my wedding.
LESSONS FROM DEATH
We all, in the end, die in medias res. In the middle of a story. Of many stories.
What I learned from my brother's death was that character is essential: What
he was, was how he died. Tuesday morning, he called me to ask me
to hurry up to Palo Alto. His tone was affectionate, dear, loving, but like someone
whose luggage was already strapped onto the vehicle, who was already on
the beginning of his journey, even as he was sorry, truly deeply sorry, to be
leaving us.
He started his farewell and I stopped him. I said, "Wait. I'm coming. I'm in a taxi
to the airport. I'll be there." "I'm telling you now because I'm afraid you won't make
it on time, honey."
When I arrived, he and his Laurene were joking together like partners who'd
lived and worked together every day of their lives. He looked into his children's
eyes as if he couldn't unlock his gaze.
Until about 2 in the afternoon, his wife could rouse him, to talk to his friends from
Apple. Then, after awhile, it was clear that he would no longer wake to us.
His breathing changed. It became severe, deliberate, purposeful. I could feel
him counting his steps again, pushing farther than before. This is what I
learned: he was working at this, too. Death didn't happen to Steve, he achieved it.
He told me, when he was saying goodbye and telling me he was sorry, so sorry
we wouldn't be able to be old together as we'd always planned, that he was
going to a better place. Dr. Fischer gave him a 50/50 chance of making it
through the night. He made it through the night, Laurene next to him on the bed
sometimes jerked up when there was a longer pause between his breaths.
She and I looked at each other, then he would heave a deep breath and begin
again.
This had to be done. Even now, he had a stern, still handsome profile, the
profile of an absolutist, a romantic. His breath indicated an arduous journey,
some steep path, altitude. He seemed to be climbing. But with that will, that
work ethic, that strength, there was also sweet Steve's capacity for
wonderment, the artist's belief in the ideal, the still more beautiful later.
Steve's final words, hours earlier, were monosyllables, repeated three times.
Before embarking, he'd looked at his sister Patty, then for a long time at his
children, then at his life's partner, Laurene, and then over their shoulders past
them.
Steve's final words were: OH WOW. OH WOW. OH WOW
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